About Rare Humans

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is a genetic, progressive disease characterised by the formation of cysts which increase kidney size and can ultimately lead to kidney failure. Approximately 10,000 people are living with ADPKD in Australia.*

Rare Humans is a project inspired by the courage and optimism of people living with ADPKD. This is a collection of unique stories about Australians who have chosen not to be defined by their diagnosis. 

Otsuka Australia Pharmaceutical would like to acknowledge the support and generosity of the individuals featured in the book. Each person has kindly donated their time and story. We would also like to acknowledge the guidance and support of PKD Foundation of Australia.

*Prevalence of ADPKD in Australia is based on epidemiological data from the European Union sources (Wiley CJ et al. Nephrol Dial Transplant 2017;32:1356-1363).

Request a copy

If you would like a copy of the booklet 'Rare Humans' ask your nephrologist.